Nephropathic Cystinosis: New Insights and Approaches to Care (A Knowledge-Based Activity)

This activity will address the pathogenesis and management of nephropathic cystinosis (NC). Recognition, evaluation, diagnosis, and treatment will be discussed. Evidence-based management strategies, clinical evidence for available treatment options, and possible directions of future research, will also be included.

Learning Objectives: 

After participation in this activity, learners will be better able to:

  • Recognize the etiology and pathogenesis of nephropathic cystinosis (NC) to facilitate a timely and accurate diagnosis.
  • Identify the diagnostic pathway for NC, including clinical evaluation, laboratory assessment, and genetic analysis, with emphasis on the importance of a timely diagnosis to optimize renal and overall outcomes.
  • Describe an individualized treatment pathway for NC that spans the life of the patient.
  • Identify current research findings, practice guidelines and novel therapies to further develop appropriate individualized treatment options and improve NC outcomes
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Target Audience

  • Physicians
  • Family Physicians
  • Physician Assistants
  • Nurse Practitioners
  • Nurses
  • Pharmacists
  • Dietitians
Accreditation/Designation of Credit Statements:

Physician

The National Kidney Foundation is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

The National Kidney Foundation designates this enduring for a maximum of 1.0 AMA PRA Category 1 Credit(s).  Physicians should claim only the credit commensurate with the extent of their participation in the activity.  

This enduring material activity “Nephropathic Cystinosis: New Insights and Approaches to Care” has been reviewed and is acceptable for up to 1.0 Prescribed credit(s) by the American Academy of Family Physicians.  Term of credit begins September 21, 2016.  Term of approval is for one year from this date.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.  

Physician Assistant

AAPA accepts certificates of participation for educational activities certified for AMA PRA Category 1 Credit(s)™ from organizations accredited by ACCME or a recognized state medical society. Physician assistants may receive a maximum of 1.0 hours of Category I credit for completing this program.

Nurse Practitioners

This activity is approved for 1.0 contact hours of continuing education (which includes 0.41 hours of pharmacology) by the American Association of Nurse Practitioners. Activity ID 16082309.

This activity was planned in accordance with AANP CE Standards and Policies.  

Nurse

The National Kidney Foundation is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

Awarded 1.0 contact hours of continuing nursing education (includes 0.41 contact hour in the area of pharmacology).

Dietitian

The National Kidney Foundation is a Continuing Professional Education (CPE) Accredited Provider with the Commission on Dietetic Registration (CDR).  CDR Credentialed Practitioners will receive 1.0 Continuing Professional Education Units (CPEUs) for completion of this activity/material.

Pharmacist

The University of Illinois at Chicago College of Pharmacy is accredited by the Accreditation Council for Pharmacy Education (ACPE) as a provider of continuing pharmacy education.  Reading the learning objectives and faculty disclosures; participating in the entire knowledge-based activity, completing the pre-test, active learning activity, post-test (minimum score of 70% required; may be taken up to 3 times) and activity evaluation; estimating duration of time spent on the activity; and submitting NABP eProfile ID and MMDD are prerequisites for receiving continuing pharmacy education credits.  This knowledge-based activity has been assigned ACPE Universal Activity Number 0016-9999-16-085-H01-P, for 1.0 contact hours (0.10 CEUs).  All ACPE credit awarded to participants must be uploaded to CPE Monitor ™ within 30 days of the activity date, so pharmacists and pharmacy technicians are required to provide their e-Profile ID and date of birth (MMDD) at the time of the activity.  Please contact pharmce@uic.edu if you do not see activity information listed within 30 days.  For more information and to set up your e-Profile visit: www.MyCPEmonitor.net.

Method of Participation:

Learners will review the materials on accreditation information, target audience, learning objectives, and disclosure information; participate in the entire self-study consisting of slides and audio; and complete the post-test (minimum score of 70% required) and evaluation to successfully earn credit.  The estimated time for completion is 1.0 hours. 

Declaration of Disclosure:

It is the policy of the National Kidney Foundation (NKF) to ensure balance, independence, objectivity, and scientific rigor in all CME/CE activities. Any individual who has control over CME/CE content is required to disclose to learners prior to the activity any relevant financial relationship(s) they may have with commercial interests supporting this activity or whose products or devices are discussed in this activity.  

If, on the basis of information disclosed, a perceived conflict exists, resolution will be achieved based on NKF's Disclosure and Conflict of Interest Policy.

Unlabeled/Investigational Use:

During their presentations, faculty may discuss an unlabeled use or an investigational use not approved for a commercial product. Each faculty member is required to disclose this information to the audience when referring to an unlabeled or investigational use.

Disclaimer:

The faculty and National Kidney Foundation (NKF) do not recommend the use of any pharmaceutical, diagnostic test, or device outside of the labeled indications as approved by the FDA. Please refer to the official prescribing information for each product for approved indications, contraindications, and warnings.

Information contained in this NKF educational resource is based upon current data available at the time of publication. Information is intended to help clinicians become aware of new scientific findings and developments.  This NKF educational resource is not intended to set out a preferred standard of care and should not be construed as one. Neither should the information be interpreted as prescribing an exclusive course of management.

Variations in practice will inevitably and appropriately occur when clinicians take into account the needs of individual patients, available resources, and limitations unique to an institution or type of practice. Every healthcare professional making use of information in this NKF educational resource is responsible for interpreting the data as it pertains to clinical decision making in each individual patient.

Course summary
Available credit: 
  • 1.00 AAFP Prescribed Credits
  • 1.00 AANP Contact Hours
  • 1.00 ACPE Contact Hours
  • 1.00 AMA PRA Category 1 Credit™
  • 1.00 ANCC Nurse Contact Hours
  • 0.41 AANP Pharmacology
  • 0.41 ANCC Pharmacology
  • 1.00 Attendance
  • 1.00 Category I Credit for Physician Assistants
  • 1.00 CDR CPEUs
Course opens: 
09/21/2016
Course expires: 
09/21/2017
Cost:
$0.00
Rating: 
0
Faculty Disclosures:

Craig B. Langman, MD
Professor and Division Head, Kidney Diseases
Feinberg School of Medicine, Northwestern University
The Ann and Robert H. Lurie Children's Hospital of Chicago
Chiacago, IL
Disclosure: Received a consulting honoraria and travel from Raptor for self-created lectures in the area of cystinosis.

Sandra Amaral, MD, MHS
Assistant Professor
The Children's Hospital of Philadelphia
Philadelphia, PA
Disclosure: Received an honoraria from Raptor Pharmaceuticals in the area of transition of cystinosis patients.

Frederick Kaskell, MD, PhD
Professor & Vice Chair of Pediatrics
Montefiore Medical Center
New York, NY
Disclosure: Has no financial relationships with commercial interest(s).

Planning Committee Disclosures:

Craig B. Langman, MD
Professor and Division Head, Kidney Diseases
Feinberg School of Medicine, Northwestern University
The Ann and Robert H. Lurie Children's Hospital of Chicago
Chiacago, IL
Disclosure: Received a consulting honoraria and travel from Raptor for self-created lectures in the area of cystinosis.

Sandra Amaral, MD, MHS
Assistant Professor
The Children's Hospital of Philadelphia
Philadelphia, PA
Disclosure: Received an honoraria from Raptor Pharmaceuticals in the area of transition of cystinosis patients.

Frederick Kaskell, MD, PhD
Professor & Vice Chair of Pediatrics
Montefiore Medical Center
New York, NY
Disclosure: Has no financial relationships with commercial interest(s).

Sue Cary, MN, RN, ANP-BC, CNN
Adult Neprology Nurse Practitioner
Ochsner Nephrology
Baton Rouge, LA
Disclosure: Is a member of an Advisory Board for Amgen in the area of bone disease.

Martin Quan, MD
Professor of Clinical Family Medicine
David Geffen School of Medicine at UCLA
Disclosure: Has no financial relationships with commercial interest(s).

Dwayne Pierce, BS Pharm, PharmD
Clinical Pharmacist-Nephrology/Internal Medicine
Augusta University Medical Center
North Augusta, SC
Disclosure: Has no financial relationships with commercial interest(s).

James Papanikolaw, MA
Senior Scientific Director
National Kidney Foundation
New York, NY
Disclosure: Has no financial relationships with commercial interest(s).

Nathalie Harden
Director, CME
National Kidney Foundation
New York, NY
Disclosure: Has no financial relationships with commercial interest(s).

Anna Okoniewski
CME/CE Activities Manager
National Kidney Foundation
New York, NY
Disclosure: Has no financial relationships with commercial interest(s).

Douglas C. Lanier Jr., MD, FACP, FASN, FNKF
Physician
South Mississippi Nephrology
Gulfport, MS
Disclosure: Has no financial relationships with commercial interest(s).

Joseph Vassalotti, MD, FNKF
Chief Medical Officer
National Kidney Foundation
New York, NY
Disclosure: Has no financial relationships with commercial interest(s).

Beverly Benmoussa, MSN, FNP-BC
Nurse Practitioner
University of Michigan - Transplant Nephrology
Ann Arbor, MI
Disclosure: Has no financial relationships with commercial interest(s).

Kristen Xiong, MS, RD, LDN
Registered Dietitian
Fresenius Medical Care
Columbia, TN
Disclosure: Has no financial relationships with commercial interest(s).

The University of Illinois at Chicago College of Pharmacy
Office of Continuing Education and Meeting Services
Chicago, IL
Disclosure: No financial relationships with commercial interest(s).

Supported by an educational grant by Raptor Pharmaceuticals.

Available Credit

  • 1.00 AAFP Prescribed Credits
  • 1.00 AANP Contact Hours
  • 1.00 ACPE Contact Hours
  • 1.00 AMA PRA Category 1 Credit™
  • 1.00 ANCC Nurse Contact Hours
  • 0.41 AANP Pharmacology
  • 0.41 ANCC Pharmacology
  • 1.00 Attendance
  • 1.00 Category I Credit for Physician Assistants
  • 1.00 CDR CPEUs

Accreditation Period

Course opens: 
09/21/2016
Course expires: 
09/21/2017

Price

Cost:
$0.00
Please login or register for a PERC account to take this course.

Required Hardware/software

System requirements can be found here.

Contact Information:

For any questions concerning this activity, please send an email to CMEinfo@kidney.org or call NKF at 1-800-622-9010.

To view NKF privacy and confidentiality policy as it relates to CME/CE activity, please visit http://www.kidney.org/

For additional professional education resources, contact NKF at 1-800-622-9010 or visit https://www.kidney.org/professionals